Author Archives: Mike Parke

The Honeymoon

Our honeymoon was at Lainston House Hotel  – http://www.lainstonhouse.com/EXCLUSIVE_HOTELS/the_hotel.aspx near Winchester which was a whole 30 minutes drive from home. Regardless of that it was such a beautiful place it really was like being away and without a massive trek to get there which after the previous manic few weeks was exactly what we needed.

We got there to find a beautiful room with flowers, chocolates and champagne which had been left by Mike’s work colleagues, incredibly kind of them and really left us feeling like we were in the lap of luxury.

So what did we do all week? The answer, not a great deal! We were exhausted and  had the most amazing time just walking the grounds which were beautiful, a couple of days out shopping in Winchester as well as a day out on the Isle of Wight and a day walking on the beach at Milford on Sea. Kady was particularly taken by the whirlpool bath in the room which also had a TV. We also did a fair amount of eating… All in all the whole honeymoon was exactly what the Doctor ordered and we arrived home after a week feeling wonderfully refreshed and relaxed. We also managed to squeeze in an interview and appear on Channel 5 News which was a bit surreal and came on the back of our mini-media storm where we appeared in The Times, The News of the World and The Daily Express.

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Channel 5 News Piece Friday 8 October 2010

How It All Started

School in Basrah

I’ve always been a slave to the desk spending far too long there, driving myself hard to do the best I can for those who work for me. My job has for most of my life been not only my career, but also my hobby and my passion. I don’t think the military can be anything other than a lifestyle choice if you’re to have any chance of happiness and success in it.  Now all those hours sat hunched over desks built for average sized people and me being about 6ft 1 has meant that neck pain is nothing new to me. I’d lived with a mild ache for years but a good run or session in the gym normally got rid of it. However, at the end of 2009 my neck pain had slowly gotten worse and knowing we weren’t due to deploy on operations for at least a year, I thought now is the time to finally do something about this. Heat pads and enough neurofen to down a horse were losing their effectiveness and I was a bit sick of living with the pain which had for some reason started to get worse lately.

So in December 2009 I went to see my military GP to try to procure a referral for physiotherapy. He was as helpful and efficient as always and before I knew it I had my first appointment. The military have a fantastic and rapid referral system which aims to get initial assessments and quick impact treatment commenced as soon as possible. Great news we’ll soon have this cracked I thought. Physio was a nice guy, very efficient and when I had the initial assessment explained to me that the relatively low level headaches I’d been getting – the medics use a pain scale of 1 – 10, 1 being okay, 10 absolute living hell get me an ambulance now and  I was on about a 2 at this stage – were very common in people with postural problems and neck pain, he had all sorts of posters that through the use of diagrams explained the theory. It all seemed to make absolute sense and was very much the most obvious explanation.

So, off we went on the great Physio adventure. Neck pummelled, heat applied, taking a break regularly from the desk at work, stretching exercises, feet and stride analysed and corrected, he even tried sticking needles in me! We did it all and at no stage could I fault his logic, because for 99.99 % of people that was the most  likely reason for the neck pain. As an aside, what was bloody typical for me was that here I was in a room full of very nice, fit and healthy female physios and I got the hairy ar*ed South African bloke.

So all good you would think, well  by about March 10 there was no improvement and to top it all, the damn headaches were getting worse! By this time I was getting some other symptoms which were worrying me somewhat. The strangest for me was a numb spot in the middle of my tongue which seemed to come and go at random. It made me feel like I was lisping, my mouth was filling with saliva and I was becoming paranoid I sounded like Elmer Fudd. I’ve also had perfect 20/20 vision all my life, but was finding that I was having real problems when driving at night, getting tunnel vision which sometimes sprang up on me so suddenly, I had to pull the car over.

Maybe I was just turning into an old git and the time had finally come for me to have glasses when reading and driving. So I had an eye test and no, no problems there. The well meaning Optician came up with some theory about my having developed a habit of fixating on objects in front of me when driving, which caused blurred vision. I wasn’t convinced but tried the techniques he suggested which surprisingly seemed to help a bit, although I guess maybe it was just psychological and the evenings were getting lighter anyway. I’d also started to get what I call ‘shaky hand syndrome’, locking the door of the house when leaving was becoming a very frustrating two handed affair and I also found that I kept dropping things, every now and again my hands just seemed to lose their link to my brain. It was infuriating, I would be wanting an action to happen and it just wouldn’t, very hard to describe and very annoying. This was also the cause of some comedy stumbling moments when the same happened to my feet and legs. As if all that wasn’t enough, my historically poor memory had become even worse.

I didn’t really know what to make of it all but thought maybe it was all just down to stress and I needed to in the words of the often used phrase in a hard-worked Army take responsibility myself and ‘correct the work/life balance’. How could anyone possibly suggest that in the current climate people in the Army may be overworked and under-resourced?! Anyway. I did feel stressed at work which I shouldn’t have done, I’d done a similar job as a Squadron Commander albeit in a slightly different organisat1ion before, where we put up to 200 new recruits at a time through basic training. This in itself with all the changes to rules that came out of the Deepcut Inquiry, was an extremely stressful period. I therefore wasn’t phased by my current job at all and in many respects was better supported by the hard hitting planning team I now had supporting me which for structural reasons I hadn’t had in the previous job.

I certainly didn’t struggle with the work we were doing, the major problem was that despite this I was having to mentally work very hard, to think, to operate, to just be my normal self. I realize now, looking back, that it was how I was starting to feel physically that was putting me under additional pressure and not my work. As a new experience it took me a little longer to bring it all together. I’ve spent my whole life used to being sharp all the time, working on the edge, thinking and anticipating. I’d without realizing it slipped into a mentality where I was just exhausted all the time and wanted to be left alone. It was incredibly frustrating.

So around April 10 I was at the physio for another routine appointment – for some reason I cannot recall my normal person was away. However there was a lovely lady standing in called Vicky who decided to have a go at beating my neck up. Before she started she did a full patient assessment during which I told her all of the above paragraph. I must have sounded like a real sick note. I clearly did too good a job because when I’d finished talking she didn’t want to do anything to my neck instead telling me she was referring me back to the Doctor with the advice that I be referred to a Neurologist to get my neck scanned. Dammit, more delay! She explained that I had described a number of what they call ‘Red Flags’ and she was therefore not happy. I could only respect  her professionalism and off I went to make an appointment back with the Doc.

The Doc agreed and referred me to a Consultant Neurologist whom I saw shortly afterwards. He gave me a full neurological examination followed by lots of reassurance, the symptoms were very non-specific and of course the brain is still not fully understood. It could be any number of things but most likely nothing at all and related entirely to postural problems. However, there was no harm in doing some precautionary MRI scans to make sure we were 100%. I had BUPA cover – if you’re military or immediate family of then it’s nearly a 50% discount  http://www.bupa.co.uk/uk-products/hm-forces-mod The Neurologist agreed that once it was done and  confirmed there was nothing wrong with me skeletally then the Physio could really go to town on my neck and sort it out. Happy days!

MRI Scan Pictures

Okay got the MRI Scans today, think the pictures speak for themselves. Three big tumors which are unmissable at roughly the 8, 10 and 2 O’Clock positions and a number of smaller ones, although think you must need to be a Neurologist to spot those ones. The scans are in the main looking from below up through my head, so the 2 O’Clock tumor is actually in my left frontal lobe and not the right as it appears. The clouds of white you can see in some of the scans are the swelling that was giving me the horrendous headaches and making my busy summer at work not so much fun. Dexamethasone (the Roids!) have hopefully reduced most of that. The headaches, after a brief resurgence and consequent increase in Roids a couple of weeks ago have certainly gone.

Looks like a bad day on the range with a shotgun. Have chest scans as well but again I think you need to be a Consultant to make any sense of them, so I won’t put them on here. The tumors are small which is good, but bad because they’re potentially going to have to slit me open like a fish in the next couple of weeks to get biopsies from them before I start Chemotherapy. I’m just hoping at the moment that the next batch of treatment isn’t going to run through Christmas and make that  unpleasant, we shall see…

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Posh Caravanning aka Sailing

Sailing was fantastic, we were met at Gosport by one of the Royal Signals Corps Boatswains MJ, what a fantastic helpful guy. Got us sorted out with kit and set up with the boat in no time at all. In the capable hands of the experienced sailors Mark and Chris, Murray, Kady and I were soon briefed up and we were underway from Gosport to West Cowes on the Isle of Wight. It was getting late so there wasn’t a lot of time for sailing that would have to wait until Saturday, motor on, pub ahoy!

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The Great Tattoo Adventure

Okay, I’ve always hated tattoos, Kady has one and I’ve constantly given her a hard time about it. So what’s one of the first things you do when you’re told you have a Terminal Illness? Answer, something you never dreamed you would consider.

I don’t know why it was just a crazy idea that popped into my mind, my brother-in-law Adam who has a lot of tattoos traveled down to be my special adviser for the weekend which was gratefully received. He vetted the place for me and assured me it looked reputable. I’d decided to get something in Arabic script done, the original plan was for it to say the names of my ‘pack’ – Kady and our puppies – but it really didn’t translate well into Arabic. So in the end I went for ‘To all the women in my life’. Sounds  a bit cheesy but hey ho. Adam had something in Hebrew to commemorate the occasion also.

Wes at WH’Ink in Durrington was thoroughly professional, I explained how wet I was and he talked me through it all. Did a fantastic job and I’m even planning on going back now for another one!

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A Wonderful Greek Lunch with Matt and Claire

Matt had long been telling me what a wonderful chef he is and I have to admit I was a little sceptical…

However, in his usual thoughtful fashion and with he and Claire having just returned from their own Greek holiday hot on the heels of mine and Kady’s, he cooked us a wonderful Moussaka and Greek Salad as a surprise Sunday Lunch. It was delicious and spurred Kady and I to make Greek salads ourselves for about the next five days. His reputation as an excellent Chef was fully justified!

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A Day at Salisbury Races

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Well on Monday of this week I was invited to the races by some of the guys I used to work with. It was a glorious sunny but not too warm October day. Having never been to the races it was a great afternoon, really don’t understand the whole betting thing but was great to catch up with people. Races followed by a lovely curry and then home for me whilst the non-sick notes went for a few sociables. Cheers guys!

Tuesday 12 Oct Update After Appointment with Consultant

Okay so I’ve just finished an appointment with the wonderfully reassuring and helpful Dr Sharpe. I am to have a number of CT scans on Monday 1st November to re-assess what is going on with the tumors in my head and chest. Primary aims are:

1. To check the ones in my head are doing nothing really bad and behaving themselves.
2. To assess what change there has been to the tumors in my lungs with a view to getting a biopsy in the coming weeks of one of them. This is very important to get a 100% diagnosis of their cause rather than the 99% we currently sit at. This will then allow us to move on to the next step which is Chemotherapy and for that we must have the correct drug. I guess they also want to see if anything new has cropped up, hopefully not.

All in all a very reassuring visit with the opportunity to chat and ask lots of questions. Also got the chance to pop in and visit my hair removal friends the Radiotherapists, good to say hello and quickly see them.

Going Bald

I’d initially decided to jump before I was pushed and after the first few days of Radiotherapy, my head was starting to feel quite burnt and I couldn’t really wash my hair as a result. So I first enlisted the help of a friend Matt King to cut it down to a No 3 all over. A few days later my hair literally just fell out in one evening, it was a bit freaky but I was glad I had mentally prepared for it. Matt then took me down to a No 1 however a few days later I noticed  crazy bald stripes all over my head. With Kady’s help I then went completely bald. I’m sort of used to it now, have purchased the world’s biggest selection of hats, with Autumn here having a cold head has become a real issue!

No more trying to hide the baldness – unlike Murray and Phil – saving a fortune on shampoo and haircuts!

Winter has been HORRENDOUS with no hair, I could open my hat shop now I have so many variations of woolly hats! I’ve discovered that one of the things I detest the most is having a cold head! When we have visitors I always take my hat off when they arrive – it looks a bit odd – but within 5 minutes I’m apologising to them and putting my it back on! My hair is slowly starting to come back, for the first time in nearly 5 months I am starting to get sideburns again, but it’s not coming back on top, grrr!

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